Cancer Survivors Gift Shop
Showing posts with label health care. Show all posts
Showing posts with label health care. Show all posts

Friday, February 26, 2010

Avastin

avastin is a new drug out from Roche Holding AG that is said to help fight ovarian cancer.
approximately 150,000 women die each year from ovarian cancer and many more are being diagnosed.
though it has yet to be released and is still in a late trial stage, Roche Holding is hopeful that it will be available very soon. along with chemotherapy, avastin has the ability to beat ovarian cancer, allowing women a longer, happier life.

Thursday, May 21, 2009

Stem Cells and Cancer

Ok, I found this very interesting. In a recent report, scientists are now developing a way to fight cancer using stem cells from bone marrow. Now, I know that stem cell research is controversial (I for one believe in it as long as the cells are from your own body), but if they can take a portion of some of YOUR own bone marrow and eliminate your cancer, then I am all for it. The stem cells attack only tumors and not healthy tissue and your body will not recognize them as foreign invaders, leaving it safe and effective.
So far this study has been conducted on mice and in cultures, but has proved to be effective in lung, breast, and cervical cancers. Not to mention it is showing a promising 38% success rate. Though this is not available as of yet, the hope is for human trials to begin in 2 - 3 years.

Wednesday, April 1, 2009

M.S.A.T.H...The Final Chapter....

.....this time, its personnel.....
yes I meant to spell it that way:)

Ok, I think I left off on Wednesday....Thursday and Friday were pretty quiet, as was most of Saturday. With the exception of 1 individual and I am not sure if he was important in the hospital or not...my guess would be that he was just the poor schmuck at the bottom of the totem pole, stuck working on a weekend. Anyhow, we (my roommate Kristina and I) were outside smoking with some other ladies when this idiot pulls up and starts running on about something....I had no clue at the time as I do not speak Croatian. So he goes over to some note that was posted on the window of the hospital and all of the women put there cigarettes out as I still have mine. He looked at me and said something similar to "blah blah blahich" and I responded with one of the only phrases I know "ne razumijem Hrvatski" (i don't understand Croatian). He goes back over to the note posted and says "Can you read?" really sarcastic...which of course opened a window for me to respond with "not Croatian" and smiled. So he led everyone inside and that was about it for the excitement of the day.
Sunday morning rolls around and going to the basement for my cup of coffee, I was told by another patient (actually Kristina was told and then interpreted it) that visitations were not allowed at all for that day due to the flu going around. It must have been some strange 24 hour Croatian Flu I never heard of, because they were already informing us that visits will be back to normal on Monday.
So we arrive in the basement, I get my coffee out of the machine and head outside (not for a smoke, but for the fact that I like sitting outside drinking my coffee in the morning). To my surprise, the doors were locked. I went to the other doors marked "Emergency Exit"..those were locked also. Every door in the hospital was locked and only certain personnel had the keys! Was this a lock down that is often shown in women's prison movies?! Was that safe?
I am certain, that somewhere along the lines, lock down on a hospital is not only a hazardous situation, but illegal and immoral as well. "In case of emergency, jump out the window" type of deal, does not set well with my brain. I must admit, that part of me..ok, half of me, wanted to pull the fire alarm just to witness the chaos. I still get an evil grin just thinking about it :)

for those who missed the first post in the "My Stay at the Hospital" series..click here

Monday, March 30, 2009

Cancer in France

Ok, I was going to post about a cure for cervical cancer that was recently discovered in France, but unfortunately all of the sites are in French...go figure. So while I refresh my brain and kick myself for not paying attention to Madame Micke in 10th grade, I will continue to try to find adequate research on this subject. While I'm at it, I might even look up first year French to see if I can find out what happened to Marie-Claire, Annette, Jaques, and George (though I think George probably found out that he was adopted and killed them all).
Anyway, I did find other interesting facts such as:
  • It is the leading place that celebrities such as Kylie Minogue and Marianne Faithfull go for cancer treatment.
  • After hospital treatment, patients are often sent to a "medical spa" for after treatment care (All i got was a bill)
  • France has the highest survival rate of people with cancer in Europe.
As I said, I will keep trying to find the studies on the cervical cancer cure..in English of course:)

Thursday, March 26, 2009

Depo Provera Pros and Cons

If you or someone you know is thinking of using Depo Provera, please read the following information. There are many reasons women choose to use the contraceptive, but we must also weigh in the problems associated with it.

Pros
  1. you get an injection only once every 3 months.
  2. menstruation has either stopped or became less frequent in some women
  3. you won't have to worry about remembering pills, applying patches or inserting your diaphragm right before intercourse.
  4. it is 97% -99% effective against pregnancy
  5. contains no estrogen
  6. cramping and pain associated with menstruation may be lessened
  7. you may still conceive after stopping Depo Provera (though it may take up to 18 months after)
  8. it is safe for nursing mothers
  9. it is generally less expensive than other forms of birth control
  10. it is effective 24 hours after your first dose

Cons
  1. does not protect against STD's
  2. some women have had heavier and more frequent menstruation during use
  3. may cause you to lose calcium in your bones. longer exposure means greater loss that you may not get back.
  4. most women experience weight gain in the first year and an increase in body fat
  5. is still not approved in certain countries
  6. may cause abdominal pain and discomfort
  7. may cause headaches
  8. increased fatigue is shown in some women
  9. breast cancer tumors were found in dogs that were given Depo Provera in research studies
  10. it caused endometrial cancer in 1 out of 6 monkeys in research studies
Like I said, this is just a list of some advantages and disadvantages of the usage of Depo Provera Contraception Injection. I suggest that if anyone is considering this form of birth control, to do more research on the drug. And also follow this blog for more posts about the health risks and history of Depo Provera (medroxyprogesterone acetate)

Monday, March 23, 2009

Jade Goody

though i never really followed her life (she was a UK reality TV star and i live in Croatia and don't like reality TV shows), but this story did astonish me. how someone so young could die from a disease, most doctors will tell you is nothing to worry about. proves them wrong, doesn't it.
she was born on June 5, 1981 and passed away on March 22, 2009..making her only 27 years of age at her time of death. it is upsetting how she had battled with poor health since 2002 and the doctors could find nothing wrong until 2008.
a short outline of the events:
2002- cervical pap test that revealed abnormal cells...possibility of cancer.
2004- tested for ovarian cancer..came back negative
2006- tested for bowel cancer..came back negative
2008- went for hospital tests after collapsing for the 4th time....diagnosis...cervical cancer.

why was she not checked for cervical cancer in 2002? if she was, it is not mentioned in the articles that i have read. perhaps they made a mistake and don't want to admit it. though admitting to ignorance is worse, i believe.
here is a quote from her spokesperson upon the cancer diagnosis in august 2008 while she was on the show Big Boss (Indian version of Big Brother) : "It looks like her cancer is at an early stage but we will have to wait until she gets back to Britain and sees a specialist and has more tests".
i was told that as well, as i am sure a lot of us who were diagnosed were told.
as early as September 1, 2008, she was told that the cancer was in advanced stages and her survival chance was 65 percent. after months of surgery and chemotherapy, she lost her battle and her life.
our hearts and thoughts go out to the family and friends of jade goody and all women who have fought the battle of cervical cancer. i will end this post with a quote from wikipedia:
"When news broke that Goody's cancer was terminal, medical authorities in the UK began reporting a surge in requests from women, particularly younger women, for screening for cervical cancer. This reversed a trend which had seen demand for screening decline overall in the past decade, with the highest decline being among women aged 25-29. As a result of the publicity surrounding Goody's illness, on 13 March 2009 government health ministers agreed to review the NHS's policy of not offering screening for cervical cancer until the age of 25 in England (it is 20 in the rest of the UK). Goody issued a press release the same day, saying that she was "immensely proud" that she had helped prompt the review."

Sunday, March 22, 2009

Hospital Menu

so i won't have to describe the nutritional value (or lack thereof) of every meal, i will list the food that was offered. this list includes everything: meal, condiments, and drinks....bread is always white

Monday
lunch: broth

Tuesday
nothing

Wednesday
breakfast: 2 slices of bread, bowl of milk (what am i, a cat?)
lunch: broth, hot dog, 2 slices of bread
dinner: rice with some kind of meat (i think it was meat), 2 slices of bread

Thursday
breakfast: 2 slices of bread, a packet of butter (breakfast is now known as "whats for bread?")
lunch: pickled beets, 2 slices of bread, noodles
dinner: cream of wheat, 2 slices of bread (by now, i was wondering if they just keep giving us the same 2 slices of bread we didn't eat from previous meals)

Friday
breakfast: 2 slices of bread, cream cheese
lunch: 2 slices of bread, fish, spinach-potato-cabbage mix, broth (actually, this meal was pretty good)
dinner: macaroni and cheese (i think this was diet mac and cheese because it had half the milk and cheese of others), 2 slices of bread

Saturday
breakfast: 3 slices of bread (must have had an extra slice laying around), butter, jam, bowl of warm milk
lunch: corn grits, beef stew, seasoned salad, 2 slices of bread, broth (again, not bad)
dinner: chicken and dumplings, banana, 2 slices of bread (not as good as mine, but still ok)

Sunday
breakfast: 2 slices of bread, cream cheese, bowl of warm milk
lunch: 2 slices of bread, broth, macaroni and cheese (wasn't too bad after i mixed it with my broth)
dinner: boiled potatoes, seasoned salad, and of course...2 slices of bread

Monday
breakfast: 2 slices of bread, bowl of white coffee (must have been my "farewell" present)

for those keeping track..that was 33 slices of bread:)

M.S.A.T.H...Part 7

Wednesday morning i was woken up as usual at 6:00 am sharp by a nurse. good news was, i was allowed to finally eat, so i anticipated the arrival of breakfast, which was due at 7:30 am, cracked open my book and began to read. btw..nothing else to do there without a television or radio.
like clock work, my first meal arrived and to my dismay, it was less than typical hospital food. it consisted of 2 pieces of white bread (not toasted) and a bowl of warm milk. ok, i will repeat just in case you think i mistyped or you misread....a BOWL of warm milk, as in, not a cup. now, rather the milk was for me or the vermin, i am not sure. though someone should inform these people that it is a woman's hospital and not a veterinary clinic. the only time i drink milk from a bowl is after i am done eating cereal, which apparently, they forgot to add. they also forgot butter, jam, jelly, or anything else that may go with bread.
at 8:00 am, the doctor came in with about 6 interns to check on us and remove the gauze from my vagina. of course, without curtains, my entire womanhood was there for all to see, including my roommates.
the rest of the day was long, but i did manage to finish my book, and since one of my roommates was sent home, it was just 2 of us, which made it a little more quiet and peaceful.

Friday, March 13, 2009

M.S.A.T.H...Part 6...Tuesday

ok, just thought i would warn you that this will in fact be a long post. this was the day of surgery and my nervous breakdown (to put it mildly). however, you will get 2 pictures and a few links with this post.......so here we go.

Tuesday morning began abruptly and precisely at 6:00 am (as did every morning after that). We were awakened by the nurse (to whom i like to refer to as Brunhilda) flipping on all of the lights and yelling "dobro jutro", though she did not sound as chipper as one normally sounds when saying good morning loudly. She then handed each of us a thermometer and left the room. 10 minutes later, she returned like a drill sergeant, ordering us out of our beds and to line up on the other side of the room. After a long speech to us, which i didn't understand, she made the beds and left. Now, when I say "she made the beds"..I refer to just folding down our blankets to the bottom of the bed (as if we were done with them) and straightening our pillows. I will get into the sanitation of the place later on.
Anyway, 15 minutes after Brunhilda left, I went in to take a shower. I dried myself off with a shirt (there were no towels, remember?) and then laid in my bed waiting for the time to pass. It was a very long morning since I was not allowed anything to eat or drink and that included water. Though the one women in the room, was allowed, so we (Kristina and myself) watched her eat. I will get into the menu and nutritional aspects of the meals later on as well.
Finally, around 10:00 am, Brunhilda came to get me and Kristina and took us to pre-op. As we walked down the halls (there are absolutely no wheelchairs..not kidding), I could feel the anxiety start to build within me. We arrived in a room with pre-made beds and we undressed and laid down in our individual beds (i should be thankful that we didn't have to share one). Brunhilda left and 2 other nurses came in and covered me with a green paper blanket and place my hair in a green paper hairnet (at least I matched) and wheeled me in to a room right outside the operating room. The one nurse gave me a little blue pill, which I later found out was a pain pill called "Ketonal" (though it would have been nicer to have the little blue pill from "The Matrix") and prepped my veins for the IV needle.
They stuck a needle in my hand 1st and it hurt a lot. I'm not sure if they missed or what, but they had to try again. So the nurses (and I actually mean morons) chose a spot directly above the 1st and of course, something went wrong. By that time I was in tears. Let me briefly explain to you my pain tolerance. Last June, I had fractured a rib and still moved about and never took a pain pill. I have had many bad relationships and am accident prone as well. So in the course of my lifetime, I have had broken ribs, fractured ribs, been in a fire (as you will see from the picture of my hand), fell down numerous flights of stairs, had my head put through a window, and have been sideswiped by a drunk driver while I was driving a taxi...just to name a few. So my level of pain that I can tolerate, is pretty high. The needle freaking hurt like Hell.
The 3rd attempt was apparently a charm as they stuck the needle in the inside of my elbow and it was pain free at the time. Then it was Kristina's turn to get the IV needle and they actually broke the needle in her hand. She ended up with the IV in the same place as mine. I then turned to her and said "I hope surgery goes better" and she smiled.
They then wheeled me in to the operating room and I heard a nurse say that they had put something in my IV and I would feel very "drowsy?" I'm not entirely sure what she said after the word "very". All I know is that when I heard her, I was staring at the ceiling in the operating room and then I opened my eyes to another ceiling in the recovery room.
I remember when I woke up, a nurse asked how I felt and I told her that I had to "go pee" and she replied "No you don't" and that was it. She took my blood pressure while I was still in the bed they had used for the operation and then I climbed into my hospital bed (not an easy task after having a chunk of your genitalia removed) and was wheeled up to my room. I then grabbed my glasses from the table and saw my right hand. I had 2 puncture wounds from where they had attempted to put the needle (or was attacked by a vampire) and a lump or knot half the size of a golf ball that was purple, green, and black.
Now a golf ball may not seem all that big, but take a look at your hand and imagine shoving half of a gold ball under the skin. Scary huh? I then located my cell phone and messaged Bela to tell him that I was okay. Within the next hour or so, several nurses came in to check on me (though an English speaking one would have been helpful). I asked 3 times to 2 different people about when I would be allowed to eat, drink, or even use the bathroom (I don't care what the nurse said in recovery, I really did have to pee). One nurse answered "sto"..meaning "what" and the other said I was not allowed out of bed for 3 days. No bed pans and not allowed out of bed..this was not going to be a pretty sight.
Around 3:00 pm, I asked a nurse again, if I may use the toilet. She gave me the "1 minute sign" with her finger and at that moment I felt like raising the "not so pleasant sign" with another finger. But I refrained. I then messaged Bela and told him that I wanted to come home. What was the point of being looked after if communication was impossible anyway? A doctor came in about 4:00 pm and spoke a little English, finally. She asked how I was feeling and I told her that I wanted to go home. She said I was suppose to take it easy for 10 days and I said that would be fine. I told her that I did not work, had a live-in boyfriend and had no kids living at home, so bed rest was completely possible. She responded with "You can still have kids". I repeated that I did not have kids at home so I could get bed rest. I even said that I didn't want anymore kids. She then said "You didn't have a hysterectomy. You can still have kids" I must admit, the thought of jumping up and smashing her head against the wall, did enter my mind.
A half hour later, Bela showed up and I told him everything that had happened that day and showed him my hand. Told him I wanted to leave and go home so he went out to talk to someone. He came back and told me that I had to be there for a few days (not sure why, since I read several articles online that said conization was outpatient surgery). That is when I really lost it. I don't think I cried that much since my father passed away. But the real clincher was when a nurse came in about 5 minutes after and took Kristina to go use the toilet and walked out of the room. At that moment, I knew that I was on my own. I stood up out of bed, which was not an easy task, and walked myself to the bathroom to relieve myself of the urine that was still inside of me since before surgery (roughly 7 hours). Bela kissed my forehead and said he would see me tomorrow and left. The rest of the night, I spent crying until I finally cried myself to sleep.

"Right after surgery, you will be taken to a recovery area where nurses will care for and observe you. Usually you will stay in the recovery area for 1 to 4 hours, and then you will go home."

As with any procedure that is done under anesthesia, you will probably need to fast for 6 - 8 hours. You must sign an informed consent form. The procedure is done on the same day (outpatient) and a hospital stay is usually not needed

The mildew on the wall beside my bed. Note that the wall gets darker but the pole stays white:



Picture of my hand 1 week after surgery:

Monday, March 2, 2009

My Stay at the Hospital Part 3----Monday

We arrived bright and early on monday morning at "klinika za ženkse bolesti i porode"...basically it translates to "hospital for women". after asking 3 or 4 people for directions, we finally found the ward we were to be in. the wait was only about a half hour, so it wasn't so bad (though having more than 3 chairs in the waiting area would have been nice). but then we found out that "monday was preparation day". so basically, sunday was just a trial run and i was regretting not having that morning cup of coffee i deprived myself of. my boyfriend, bela, had then informed the nurses that i spoke very little croatian and i was from america. one nurse (we will call her blondie) , responded with, and i quote, "no problem".
so we go into the room that i will be staying in. it is what i described, with the 4 beds, 1 toilet, 1 shower, 2 closets, and 1 tv (which i guess is only for the lucky 2 people on the one side of the room), no curtains which equals no privacy. upon further inspection of this facility, i noticed that there were not any towels in the shower room, no hospital gowns (not even the paper ones), no juice or watered offered (even at meals), no toothpaste, toothbrush, paper towels, shampoo, or any other little complimentaries you might receive at a hospital. we even had to ask for our toilet paper. this just all seemed odd to me as i was under the impression that hospital was in fact short for hospitality. pretty much, if you didn't bring it, you didn't have it.
so i picked a bed, only 2 left (yes, the ones without the tv) and bela left. i unpacked some belongings and waved to my 2 roommates, who waved back but that was about the extent of our conversation for the day. i cracked open a book that i had bought just for my visit (very good btw..."one last scream" by kevin o'brien). i then fell asleep reading it due to lack of sleep the previous night....to be continued

Monday, February 2, 2009

Test Results

well, my tests came back decent. chest x-ray showed no signs of lung cancer (great news). EKG was good and my blood tests came back ok as well. though i am lacking in iron and protein, it is still not major (i just need to start taking vitamins i guess). but maybe i don't. this brings me to the whole "blood test procedure" questions.
why do they advise you not to eat or drink anything 12 hours before a blood test just to tell you that you have low iron and protein in your system? shouldn't we be able to go about our normal routine and intake of foods before a blood test? that would be the most accurate of results i think. my normal morning is 2-3 cups of coffee with milk and sugar, so if i am denied that, then my sugar will be lower than it normally is at 8am. thereby making the results that they got while i was fasting, completely false compared to what my blood results would normally be.
now seeing how i graduated high school through a summer school program, i am sure (insert sarcasm here) that the doctors would know more about my body than i do. i am just making an obvious observation about medicine and how i think it should be performed.
everyone may be created equal, but our bodies are not.

Friday, January 16, 2009

Conization

So i went to the doctor yesterday and found out that i need a conization. of course, after i got home, i started doing research on this. here is what i found out:
conization, also known as cone biopsy or cold knife biopsy, is where a piece of flesh from the cervix is taken out, either with a scalpel or laser, in the shape of a triangle. this piece is similar to a cone shape, hence the name.
this procedure has 2 functions:
  1. to remove the abnormal or cancerous cells
  2. to further investigate the extent of the cancer
upon removal of the tissue, the sample is then examined and the doctor and patient then decide what the following steps should be. sometimes, this is all that needs to be done. sometimes, further treatment is required.

this is a picture that i found on the internet giving a description of the cone biopsy process.


In a cone biopsy, the patient lies on her back, and a speculum is inserted into the vagina (A). The cervix is visualized, and a cone-shaped piece of the cervix is removed (B and C). A cauterizing tool is used to stop any bleeding (D).

in rare cases, it may become impossible to carry a fetus full term, so you may want to ask your doctor about this if you want to have children in the future.

Thursday, January 8, 2009

The Right to Live vs. Insurance

not sure about everyone out there, but i reside in zagreb, croatia. i am a united states citizen, born and raised for 35 years, so i know how the US health care system is. i currently have insurance to which we (my boyfriend actually) pays every month. it is expensive but mandatory here.
it is extremely difficult to find a gynecologist that accepts insurance that is taking on new patients. let alone trying to find one that speaks english. so everything so far has been out of pocket expense and quite frankly, we are going broke because of it.
if paying for insurance is required, then the government should be required to provide adequate doctors.
when i go into the hospital, fortunately (i guess), it will be covered by insurance. however, the cost of the operation is 4,000 kunas and 150 kunas per night, roughly 4 nights, in the hospital. those figures are our co-pay of 10%. so the entire process will cost about 4600 kunas or $1000 our expense and 46,000 or $10,000 totaled.
why does a procedure that they consider to be "routine" and only takes about 2 hours cost $8000 to begin with?
and why does the person who is needing the surgery have to pay? haven't they been through enough? when will the bureaucrats get off their asses and start helping civilians? do we not have a right to live or does that just pertain to the elite?

Wednesday, January 7, 2009

Don't Sweat the Small Stuff?

i know that there are a lot of bigger concerns when dealing with cancer. there is the pain, the twinges, the not knowing, the nausea, the worrying about death, and the expense, just to name a few. but i would like to discuss the little things. they are the ones that are important to me but are dismissed by others who are not experiencing them.

  1. hair loss- i am not and have not gone through chemotherapy. though my hair is in fact falling out and by the clumps. this is due to hormone imbalance (or so i read on the internet in a medical journal). i realize that great hair is just vanity, but it depresses me when i see enough hair in my hair brush to make a wig for a small child.
  2. discharge- i am not referring to normal, everyday vaginal discharge. i am talking about the black, foul smelling that reminds you of a squid in a fish market. no matter how much i cleanse, i cannot get rid of this. i feel like the unsexiest person in the world with this even though it is normal. see my post The Squid Complex
  3. fatigue- i do not work or have children running around the house, so this should not bother me. but then again, if i don't work or have children running around, then why am i so damn tired all of the time? we are eating a healthier diet, much more healthier than before the cancer. again, considered normal, but i just don't feel normal when i walk around like a zombie half of the time.
  4. hot flashes- nothing like turning the heat off in 30 degree temperatures and then stripping down because its "hot?". i was a cook in many restaurants and am use to high heat. there is no reason why i am sweating at below freezing temps.
like i said, these are just the small things, but according to number 4, i am sweating the small stuff.